Friday, March 18, 2016

my journey so far...

This blog will be able my health. Be prepared this will be a long post...I will try and keep it short, but then again ...I want to post most of the story...
It started last year...I started having back pain...lower back pain...when I walked while going hunting for the mysterious morel mushroom.....then I started walking funny--What I mean by walking funny...I felt like my legs were going down....
I went on thinking it would eventually go away...not...Then one night my youngest was trying to tickle my feet and I didn't feel a thing...my left leg kinda of felt numb...
So I decided to go to my doctor, or rather a local clinic that has a sliding fee scale ( I have no insurance...there are many of us out here that don't have insurance..., I don't want to get started on that soapbox)...The doctor   put me on a med, Neurontin and stated I probably have a neurological disorder ,maybe a thyroid issue...so I went on and took the Neurontin...

then it seemed like my symptoms were getting worse., after a few months..I felt like sometimes my memory wasn't as good as it should be...my back still hurt at times...sometimes the wrong word would come out....tremors at night and other times .so I went back and seen someone else at the clinic...someone that had seen me before...She stated I need a MRI of head, neck , back.....and she wanted to do labs...
so labs were done and the MRI was not done yet ...since like I stated earlier -no insurance
Labs came back and my thyroid was out of whack...so thyroid med , plus Naproxen...
meds helped...
So then I filled out a financial assistance form at a local hospital...I got my MRI...and something didn't look right...so was sent to a neurologist...he order more MRIs and a lumbar puncture...they thought I had MS( Multiple Sclerosis), labs....the LP came back good, labs were good, ...follow-up with doctor ...you don't have MS , You have Small vessel disease of the brain....he referred me back to my primary, ...I seen her a few more times...
then the last time I seen her...she was very rude to me...so I changed doctors....

I seen the new doctor who does seem nice the first time I seen her and everyone was nice....
I told her of my back pain ..she sent me to a Physical Therapy Eval...I also told her the back of my head hurt when I touched it, or leaned on anything...so will be going to a eye doctor to check my eyes..
The therapist stated I needed 6 weeks of therapy...so once a week I went to therapy...for the past 6 weeks...
A few weeks ago, I messaged the new doctor of my memory issues...and she stated I needed to be seen....So I went to go and seen her and told her of the memory issues...and that wrong words were coming out more often...so she had me do a series of tests...and remember 3-4 words...say the words, then had me draw a couple of things...
Asked me if I had seen the neurologist yet( She was going to referred me to him after the eye check up)...I stated no...so she stated then that I had Alzheimer's, possible Alzheimer's..., From the small Vessel disease of the brain...so I will be sending you the memory clinic. ASAP...She followed me out to the waiting room after she had asked about financial situation.....Thankful I have the financial assistance or I would not be going to the doctor..
the next week later...still no call from the Memory clinic...I googled it and then called the phone number that was on it ...it  was no longer in service....so I called doctor and let them know I hadn't heard anything......nothing no return phone calls a week later...then I messaged the doctor ...I got a response from the doctor office...the Memory clinic is no longer open it is part of the neurology departments......
They finally called I got a appointment next week...

This is the short version of my battle so far...


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