update on health

Well, where should I begin?

The last post I told ya about going to see the neurologist and him putting me on a couple of meds

The one med I had a very bad reaction to after taking it for a day and one dose....I had the shakes like Parkinson's, needless to say I asked for that med to be added to my allergy list( in which that's the only one)…..

I have seen the speech therapist twice ( two different ones), the first one gave me a memory test and afterwards told me I didn't need another test from the neuropsychologist....the next one I seen

gave me some more testing and did see something different from the last time she seen me...and started to say something about " sometimes those with small vessel disease of the brain can" then she stops in midsentence……..   At least that's all I remember about what she said...

so now a few more visits to see if they can help....

sent me home with homework, I hate crossword puzzles and some other things....

in which some I had hard time with ..I haven't looked at again since I did them....

I guess I need to....

I still feel like I'm slipping away

Now my hubby knows a few of the things that have been going on as I told him after he got upset about all the stress of life....I think he was alittle shocked that I hide things like that to him...who knows?

well I better close for now...

Oh by the way ,Happy New Year!

Neuro visit....

Well, I have been thinking at least in my bad Brain I have been thinking maybe that's there a moderate MCI ( Mild neurocognitive disorder)...that maybe I don't have just mild...anymore so
last week I contacted, or maybe it was three or four days ago, who knows anywho....I contacted my neurologist ...and they didn't have any openings until the end of December.....then I contacted t hem again a couple of days ago and I was able to get in, yay....as I wanted another neuropysch test done....
or as in my brain is thinking another neurocognitive test...done....so I told him what has been going,...asked if any stress, hmmm of course my oldest moved back in, our water well thinking about going out ( might need to pull the well pump , in which we cant afford), ....I feel as if, im easily agitated.....and I would like another test done, since according to my records, I haven't had one done in about 2 years....( that's when I was diagnosed with the MCI......) ,so no test, but he put me on two meds( Chlorpromazine and pack of Methyl prednisone...) plus speech eval and then we will go from there...grrrrr....asked if I had speech therapy before and if it helped, it did help alittle, but I want another neurocognitive test done...grrrr ...just praise my daughter, drink plenty of fluids, eats a well balanced meal, exercise , and come back if symptoms are worse.......he also asked if I wanted another med as well, and of course I said no....so now waiting for the speech eval.....

  added note, I feel like im slipping away....wrong word comes out, a lot, see things that look like other things and then I look again and it is just a tree stump , in my brain I hear the word , I think im saying a word, but the wrong word comes out...forgotten what things are called...and I know , I feel my memory slipping away...

well that's it s for now

slipping away

 

I feel today or rather the days are just slipping away...

away from my memory

memories slipping away

slowly going away

the faces of family,

the familiar places...

I hate this disease

I cant say this enough

Why???

 

Today is a bad day for me....maybe its the stress from this past week, maybe

just too much stress from this week

maybe the weather( dreary rainy, cold day)

I really don't know

but I didn't feel very good this morning..

.I didn't recognize

my surrounds, the road

didn't know for sure If I was headed the right way

in which I needed to go

 

Why?

 

Because maybe this disease is getting

the best of me

maybe its the weather

maybe its just too much stress

 

well enough of this for now

I gotta go

maybe one day

I will know .

 

neuro visit

A couple of weeks ago, or maybe it was week ago, I visited my neurologist....told him about the feeling as if the morning and the afternoon is a different day...he just stated that is to be expected....asked if I had hypothyroidism or was it hyper anyway, it was one of them....don't remember which one....he stated that that could part of the memory issues....then checked refluxes and believe it or not my left leg finally had reflux to it....all he stated was nice reflux...I really don't understand this is the first time I had reflex in the left leg...and I couldn't remember the three items, I did remember the two of them I think.....he stated get at least 8-10 hours of sleep....hmmm how can I can 10 hours of sleep.....
     He also noticed me limping, I told him that my knee hurts this morning....and I have arthritis in both knees...he asked if I had someone to look at the knees, and I told I had.....maybe that's why I felt the appointment was cut short.....maybe it was because of the knee reflexes worked that day...I don't know......I just don't understand how my reflex could be gone all this time and now show up....who knows....I tried googled it...and couldn't find anything....
 well that's it for now

movies....memory....

Where should I start on this post...I know what basically I want to say....what I want to post sorta...
Maybe I should just tell ya....
    Well , where to begin ?.......I guess I should begin or try to convey what I want this post to be about.....We have a lot of movies, ( DVD's) I have watched about everyone of them....Might be a few that I haven't seen.....When sometimes camo girl and I start watching a movie...I know I have seen it more then a dozen times...but I vaguely don't remember the movie...its like watching for the first time, sometimes...I mean I know I have seen it, but I feel like I haven't, Haven't told my family about it....I know they would look at me like huh?...You have seen this more then a dozen times.....Has anyone else out there feel this way?....
   Memory....!!!!!!!!where do to begin?....Well sometimes I feel like that the afternoon is another day that has begun...We can be talking and hubby is talking about something ...I just don't remember anything about...( Things that have happened in the past)...I agree with him...that I do remember...but I don't...remember what he is talking about.....Or when I have a lot to do  in town...And if I don't personally do it...I Really don't remember that I have done it or even if I did do the errand , I vaguely don't remember it.....Am I the only one that feels like this?....Does my family even realize what is going on? Can they see my memory is fading ?....
    Last week was very stressful...I'm not going in to details but it did involve girly-girl...and her boyfriend...I didn't really feel good for about 2-3 days...I didn't feel like eating or drinking water....
Stress I know isn't healthy for me , but still life is stressful...

Rant...

I had my MRI then my follow-up with my orthopedic doctor.....Now my Rant....

I went to my follow-up and got back into the examination room...waited for a little bit...seemed like forever....Doctor comes in and states the MRI is basically showed what we suspected Patellofemoral pain /Arthritis...Then he also states that's what happens when you get old and grey....Then I asked what I could do to help it...Take the elevator he stated...and then asked if I want paperwork to prove that I was there if so...you will have to wait for the nurse to come in.....He didn't even touch my knee at all...He acted like I was just wasting his time.......grrrr...I hate when doctors don't give me any respect to their patients....then the nurse comes in who was nice somewhat...We talked about chickens and I had told her I had fallen would have told t he doctor that if he would have given me any respect...anyway she was telling me the she had a form of arthritis and she was going to give her chickens to her daughter and she was going to try and slow down alittle and that she was going to make things easy on her....I feel like she basically was telling me I need to make things easy on myself as well.....anyway I told her that I was going to keep fighting ....

That's my rant about the ortho doctor.....

Early in the week I had labs to be done, So my calcium come back alittle high ....was told by my primary to stop taking anything over the counter with calcium...and keep track of things I ate with calcium for a few days...So I googled it and guess what I found that your parathyroid can cause you to have alittle high calcium levels on labs....So I have asked for that lab....

that's where I stand at right now.....

Dizzness......

Sometime I feel dizzy. Last week We went to Sonic for a treat ( Sonic blast ) my eyes started to feel funny then ....I got very dizzy, Im glad I was driving at that time...I sent a message to my primary doctor and she got back to me today and she ordered my labs that was supposed to be done in September, but she wants them to be done in the next 30 days......So I need to go get them done sometime soon....maybe I will find out what is the reason for the dizziness....at times after I eat I have been getting dizzy as well.......

When she added the cholesterol med  she stated that I could develop diabetes.....I wonder???????

patellofemoral pain syndrome

Now...I was having knee pain in both knees, sometimes it would feel like they would lock up.
I was due to see my primary so....waited until I seen her....
So I went to go see her and she didn't like my cholesterol level so she put me on a med for that, then put me on a muscle relaxer , sometimes I feel the need to get up and move( restless leg syndrome)...then informed me I had arthritis in my both knees, she ordered a x-ray for both knees, referred me to an orthopedic doctor.

So went to the orthopedic doctor and he gave me a cortisone shot in both knees...
for the most  part they have helped, except the last few weeks, my left knee has been hurting.

Then out of the blew....a physical therapist called about scheduling me therapy session....Ok, I didn't know anything about the therapy....

I contacted the orthopedic doctor about the pain in the left knee and he is sending for a MRI  sometimes, just waiting for the call to get  the MRI....

I had my first PT today...my left knee hurts.....told me that I need to strengthen my thigh muscles to help with the knee pain.....to me that don't sound right....anywho...that's it for now

no answers

I went to my neurologist yesterday..and I feel I have no answers, besides he is hard to understand.
All he stated was basically nothing significant on the MRI, the radiologist wasn't impressed with it. If I had a major stroke it would be light up more since I had a MRI with contrast. Consider taking a baby aspirin9 in which I was at one time but heart doctor stated I didn't need it) he stated because of my small vessel disease, have you had an echocardiogram...hmm you have had one...I told him about the weakness in legs when I excert myself he stated " have you told your doctor?" He also stated hmm should we up the Neurontin, ...he did the usual neuro tests and then stated we wouldn't up the Neurontin,...you are creative...keep ahold of that...see in you in 4-6 months....lets make it it 4 months...

Here's my youtube vlog where I talk about this
https://www.youtube.com/watch?v=zVPzhugv7UU

be sure to go and watch ,like and subscribe

Well last week I had the failed bravo clip ph thing done and I thought that their would be a report from the doctor by now, So I called my doctor and left a message for the nurse about it. She called me back and stated that the doctor that did the procedure is behind on doing typing up the reports, so she look it up....all it said was I wasn't a candidate for the bravo clip to my having esophagitis..and a hernia....and then she said hmmm...let me see what my doctor wants to do....It wasn't but about five minutes later The nurse called me back and stated the my GI doctor is referring me to a surgeon....and then I can see my options....
From what I have read about the Nissan fundoplication surgery, I don't know if I want to get it done or not....cant burp, lots of gas, pain, people have had lots of trouble with it and it seems like they usually have too it over again...I guess I will wait and see what the surgeon has to tell me ....
I woke this morning hurting , legs were achy, upper abdomen hurt, chest hurt, this was after drinking my coffee, I think I might have drank it too fast.....

Well that's it for now

Bravo clip

Yesterday I went to get the Bravo clip put in. Basically they do an upper GI and then place the Bravo clip, which is placed in your esophagus to measure your ph, this is to see if you have acid reflux....
It can be either to my understanding for 24 hours or 48 hours...the only difference is to my understanding , the 24 hour one is placed while you are awake and the 48 hour one is placed while you are knocked out.

We had tried the 24 hour one first back in December ( manometer was done first, couldn't do it). So yesterday was the day the 48 hour one was scheduled. I had felt miserable  the last 3-4 days because had to be off my acid reflux med for a week before the procedure could be done. Anywho, I got there yesterday and had the iv placed along with some fluids and the nurse stated someone would be in to tell me about the lovely box I would be carrying around for 48 hours.....It seemed like eternity before the another nurse came in to tell me about the lovely little box/computer thing the I would have attached somewhat to my chest( actually to be hung around my neck). I got the education and the nurse said in passing that if the doctor gets in there and sees lots of redness then that means you have esophagitis, in which means you have acid reflux and the bravo wouldn't be placed.
The procedure was done and low and behold I didn't have to have the bravo placed, yes that means I had a lot of redness ( esophagitis) you have acid reflux.....I knew that...

My question is this " when I had almost the same procedure done back in December,(minus the potential bravo placement and a different doctor) why couldn't they just stated I had acid reflux then and not have to the same procedure again and put me thru trying to get the manometer in and then having another Upper GI done????


I still haven't seen my neurologist yet to find out what the changes are that the MRI showed...I am sore today around my upper abdomen some, but then again I woke my early this morning with the burning in my throat and of course puked. Thank goodness tomorrow I'm back on my acid reflux med

dont feel good.....

Friday morning ,we went to town and I got a rose bush( bare-rooted) and did a video on planting it in the flower garden of my garden( soon will be posted on my garden blog), then later on that day...I started feeling yucky .......also planted some garlic ( that is posted), I couldn't hardly walk up the hill from my garden spot I barely made it up the hill, not to mention the step of the back porch....
Needless to say, I took the migraine pill, nausea and Benadryl and knocked myself out.

I felt better Saturday, somewhat ,was able to weed some in the garden once it warmed outside a bit...
now its Sunday and I feel yucky again., I feel exhausted, At least I think that is what's going on...but then again I have been off my acid reflux med for about a week to prepare for the bravo clip placement next week..( I have been throwing up at least for a couple of nights).

some parts of my memory are not there...I remember some things and not others....I think if they would give me another pysh test I think I would be worse on it....

well that's it for now

Will post about how the bravo clip went and my thoughts

mri

I got my MRI done and also got the results the same day.....
The impression:
1. Chronic small vessel ischemic changes

and that's it, I wonder if there could be more....I messaged my neuro and asked about it and he stated you need a follow-up to talk about it...I do have a follow-up the in a few weeks and he stated we can talk about it then.....

In the meantime....Headaches, weakness at times, dizziness,...seeing things that aren't there...or thinking a piece of tin is a sheet of plastic....

so that's all I have right now
Be sure and go check out my youttube channel where I do post from time to time on my health.....Henni hills farm is my channel name

update....

whooooooooooeeeeeeeee........
A world wind of things have been happening to me....the last post was on going to the cardiologist.
I went there and she did her usually family history and other things put me on a heart med and  call her in two weeks and let her know how I am doing. Two weeks went by and I called her and told her when ever I exert myself I get out of breath.she stated I needed a heart cath done....so she put me on another med until I got that done. heart has been ruled out for my hard to catch my breath, I do have a few issues - leaky valves ,but not enough to worry about . So I called my GI doctor and let him know and he stated I needed another test called a manometer test and 24 hr gastric test.
I went to have the manometer test -failed it so now have to go back and do the ph teat where they put a clip in and monitor it for a 48 hours( waiting on that) .
In the meantime , I had episode where I saw someone that wasn't there, then dizziness has gotten worse, headaches have come back with a vengeance .I went to my neuroglist and he upped my neurotin and put me on a steroid med pack( same one that caused my tonsils to turn red, which they still are red) and ordered an MRI with contrast to see if any changes.....
so that's where it stands at.....
being dizzy,headaches, memeory lapses