I have felt for the last month that I have been hanging on by a thread...let me explain alittle bit and catch ya up of things here...I have small vessel disease of the brain and mild neurocognitive disorder...both can lead to dementia eventually...vascular dementia...So I had a two hour test a few weeks back( Memory-cognitive test ), just got results back....The results were mainly below average on most things...the doctor diagnosed me with Mild Vascular neurocognitive disorder...Some things on the test I was moderate impairments ( I'm not going into what I was moderate on)….
Now the hanging on by a thread point...everyone has been told to stay home unless ya need something essential....needless to say since my hubby is an essential worker I have been mostly complying..( expect for doctor appointments)...now for the feelings...yes most day this doesn't effect me, but then those days I feel like any minute I could be go into loosing my mind...loosing who I am...See socializing helps people like me...with this virus and orders to stay home...I'm not able to socializie as I used to...I used to go to town at least three days a week, visit with people while going shopping, looking at things being around people ...but with this virus, can't do that now...I'm in my own little world, I'm sure I'm not the only one with feelings like this...
People diagnosed with mild neurocognitive disorder are suppose to socialize to help them with memory/cognitive issues..but with the virus, most people with this have not gone anywhere to socialize...We don't talk to very many people at least those of us that live in the rural area ( like me).
Those of us in the rural socialize by going to church, going shopping, eating in restaurants, etc. as neighbors aren't close and really don't care I feel like...( they have their own things or are bad neighbors-that complain and aren't helpful)
These are just a few of my feelings, I might ,might do a vlog on this , still haven't decided about this...I want to do a vlog but really don't want it out there, but I guess posting this blog it's out there..
Well , I guess that's it for now
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Sunday, April 26, 2020
Monday, April 13, 2020
so answers , ugh!
So the last couple of weeks have been interesting to say the least...I went and seen endocrine doctor, was told all looks good from my stand point, ya answered all of the questions right, ya need some lab work to be done, but I want it done like at 8am instead of now ( about 10am)….but like wait until the next time you are coming into town( big city)….So I'm like I need to get them done to make sure everything is ok....So later that day I call the local doctor's office ( not in the big city) and get an appointment for those....so the day comes for the labs , I fast, get my temperature taken due to this covid 19 virus ...labs are done...next week I get the results, everything looks fine, lets see what the neurosurgeon says....
So I go to my neurologist, ( in which I made this appointment as a 6 month follow-up) He's hard to understand sometimes anyway but behind a mask ( in which all medical personal are wearing by this time)...looks like all labs came back ok, lets see what the field eye test shows and neurosurgeon says see ya in 6 months...is all He says , I wasnt' really expecting much to be said, just thought that I needed to be seen since I cancelled an appointment due to daughter's children( she was my ride that day)...and he had cancelled the one I had on the 16 of last month....not many headaches...not as many as I used to too.
I go do the field eye test ( it was like 30 minutes long) , oh wait let me back up a bit...So they ( eye doctor) calls and tries to cancel due to this virus going around...( I do want to safe )...I'm like if I cancel and reschedule the Field eye test , then I will have to reschedule the neurosurgeon appointment,...so we reschedule the field eye test along with the eye doctor ( just moved it sooner on a Monday, it was on Wednesday)...so before the week is out they ( field eye test and eye doctor) call again and tell me that they need for me to come in on Wednesday at the same time as I was initially was supposed to be there. I'm early to my appointment ( as usual) and I get the field eye test done, ( I do believe it was suppose to take longer then 20 minutes, but I don't know first time having one), they take me to see the doctor ...I am going in for a consultation, the nurse says, and I'm like no, a cyst /tumor was seen on my pituitary due to left side face droop..she's like ok, so she goes thru and asks questions, check for color blindness, and the whole nine yards...I see the doctor ( my eyes aren't diluted)...then he says no need to see unless ya have any problems, like loosing eye sight, tunnel vision ( in which I have occasionally now the tunnel vision)
It's the next day ( a shocker)...I go to my neurosurgeon appointment, and she states, everything has checked out, the labs looked ok from the endocrine , field eye test looks ok , We will see ya in 6 months, I will show ya the cyst /tumor on the pituitary...so she shows me my MRI scan and states well you have quite a few MRI's, I'm like yea...( I have small vessel disease and possible stroke back in September)...then she looks at the oldest one back in 2015 and she tells me that I had this cyst/tumor since then ...I'm like why didn't they see it back then and all she says is it wasn't a focused on the pituitary...I am dumb-founded by this infor...so she says I will see ya next year not in 6 months and they will do an MRi before you see my next...So unless I loose my eye sight they aren't worried about it and have no answers to why my left side of my face droops ask your neurologist...
So I send a message to my neurologist about why my left side of face still droops, He sends back a message to get a second opinion....I'm like what....states that my primary can do that for me...So I messaged my primary about it....also if I need to get tests done again, he states no with all the tests I don't think you need a second opinion...What!!! I have since messaged him back wanting that second opinion.
So I have no answers to why at times my left side of face ( mouth area ) droops, not BElls Palsy as I can shut my eye...I think that maybe the doctor's just don't know, just second guessing...the MRI clearly states that it's not stable at this time. I so wished I had some answers to why my face does this,.
So I go to my neurologist, ( in which I made this appointment as a 6 month follow-up) He's hard to understand sometimes anyway but behind a mask ( in which all medical personal are wearing by this time)...looks like all labs came back ok, lets see what the field eye test shows and neurosurgeon says see ya in 6 months...is all He says , I wasnt' really expecting much to be said, just thought that I needed to be seen since I cancelled an appointment due to daughter's children( she was my ride that day)...and he had cancelled the one I had on the 16 of last month....not many headaches...not as many as I used to too.
I go do the field eye test ( it was like 30 minutes long) , oh wait let me back up a bit...So they ( eye doctor) calls and tries to cancel due to this virus going around...( I do want to safe )...I'm like if I cancel and reschedule the Field eye test , then I will have to reschedule the neurosurgeon appointment,...so we reschedule the field eye test along with the eye doctor ( just moved it sooner on a Monday, it was on Wednesday)...so before the week is out they ( field eye test and eye doctor) call again and tell me that they need for me to come in on Wednesday at the same time as I was initially was supposed to be there. I'm early to my appointment ( as usual) and I get the field eye test done, ( I do believe it was suppose to take longer then 20 minutes, but I don't know first time having one), they take me to see the doctor ...I am going in for a consultation, the nurse says, and I'm like no, a cyst /tumor was seen on my pituitary due to left side face droop..she's like ok, so she goes thru and asks questions, check for color blindness, and the whole nine yards...I see the doctor ( my eyes aren't diluted)...then he says no need to see unless ya have any problems, like loosing eye sight, tunnel vision ( in which I have occasionally now the tunnel vision)
It's the next day ( a shocker)...I go to my neurosurgeon appointment, and she states, everything has checked out, the labs looked ok from the endocrine , field eye test looks ok , We will see ya in 6 months, I will show ya the cyst /tumor on the pituitary...so she shows me my MRI scan and states well you have quite a few MRI's, I'm like yea...( I have small vessel disease and possible stroke back in September)...then she looks at the oldest one back in 2015 and she tells me that I had this cyst/tumor since then ...I'm like why didn't they see it back then and all she says is it wasn't a focused on the pituitary...I am dumb-founded by this infor...so she says I will see ya next year not in 6 months and they will do an MRi before you see my next...So unless I loose my eye sight they aren't worried about it and have no answers to why my left side of my face droops ask your neurologist...
So I send a message to my neurologist about why my left side of face still droops, He sends back a message to get a second opinion....I'm like what....states that my primary can do that for me...So I messaged my primary about it....also if I need to get tests done again, he states no with all the tests I don't think you need a second opinion...What!!! I have since messaged him back wanting that second opinion.
So I have no answers to why at times my left side of face ( mouth area ) droops, not BElls Palsy as I can shut my eye...I think that maybe the doctor's just don't know, just second guessing...the MRI clearly states that it's not stable at this time. I so wished I had some answers to why my face does this,.
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