This post is to tell ya about my very typical Monday that I had the other day...I think it was this week but not for sure....
Woke up with cramps around my C-section site( have been doing this for awhile now...will be having a ct scan this week)...plus back was hurting as well( part the problem I think)....anyways....My youngest got ready for school and then proceed to go outside to wait for the bus...bus didn't come, so I proceeded to take her to the small country school she used to attend for her to get on the bus there,hoping and praying that her high school would send a bus to this small school and pick her up( small school was not in session on this day,yay)...I couldn't just call the school and ask as our landline phone was down...( We don't have a cell, cant afford it)...in between all of that, I was giving our cats a treat and one scratch me.......then I came back home and got ready to go to town.......and that was my Monday morning....thankful nothing else happened, but I felt scattered brain the rest of the day....
Thursday, September 29, 2016
Wednesday, September 21, 2016
Doctor visit
hmmm, as I have posted I think about a month ago, I had diarrhea at that time....since then...before I am ready to have a bowel movement I cramp around my incision site( C-sections, hysterectomy) and in my back....So yesterday I went to the doctor ...She had me do the UA...it came back normal( no kidney infection, which I knew...I drink mostly water)...now to wait to schedule a CT scan of my abdomen...When she was listening to my abdomen and pressed her stethoscope to my abdomen it did hurt some....I think it is scar tissue wrapped on my intestines...She did mention that...I do believe that is what it is, but then again I am not a doctor....
On memory note... I so was wanting to go to a different doctor`s office other then where I went yesterday......and felt arghhhhhh with all of the traffic....well that is enough for now....
On memory note... I so was wanting to go to a different doctor`s office other then where I went yesterday......and felt arghhhhhh with all of the traffic....well that is enough for now....
Sunday, September 11, 2016
Neuropysh appointment
Last week I finally got to see the Neuropysh as my neurologists suggested...I went thru the same tests that the neurologists gave me and my primary doctor.....The neuropysh suggest I have more testing to see where I am at and to see I how compare with other people my age and education...so now I am waiting until that appointment, which is nest month then I get to go back and see him two weeks after that to see what the test concluded...well that is enough for now so see ya later
Tuesday, August 23, 2016
neuro appt
Yesterday I had a neuro appointment. I think I failed miserably on the few test he gave me....I failed miserably on drawing of the clock, then I was certain the smallest hand was supposed to where it wasn't, felt like arguing with him about it...He again said no miracle drug for memory...I did feel scattered brain when I woke up...
He suggested to watch educational shows on PBS to help with the dementia...or rather memory loss..couldn't remember what day it was ....After I got home I looked and seen what he had put down for diagnosis., ( why I was there)...memory, in cognition and vitamin B12 deficient...
Well last week I had diarrhea, I mean pouring out like turn on the faucet...Took Imodium and now haven't had a bowel movement for 4 days.....but then again I am not really hungry...don't have a appetite to speak of...at least not really not like it was...I have another doctor appointment in a couple of weeks...
Well that is enough for now....
He suggested to watch educational shows on PBS to help with the dementia...or rather memory loss..couldn't remember what day it was ....After I got home I looked and seen what he had put down for diagnosis., ( why I was there)...memory, in cognition and vitamin B12 deficient...
Well last week I had diarrhea, I mean pouring out like turn on the faucet...Took Imodium and now haven't had a bowel movement for 4 days.....but then again I am not really hungry...don't have a appetite to speak of...at least not really not like it was...I have another doctor appointment in a couple of weeks...
Well that is enough for now....
Tuesday, August 16, 2016
updates....
Well usually when I go out to the garden, yes I love to garden....anyways I take my walking stick and also take it when I take a walk....well I have lost it, really don't know where I put it at....I think its in the garden somewhere but don't know where it is...I have walked the garden and couldn't find it......I really don't remember what it looks like either.....
I got one of my teeth pulled, it has been bothering me for a while now...finally got it pulled...
I am working on a counted cross stitch and the last few days I have felt scattered brain on it...so yesterday I didn't work on it...
I have been having issues sleeping some nights as well...the last two nights I don't get to sleep until after midnight sometimes 1 or 2 in the morning....and sometimes I don't even take a nap during the day....when I do it is usually just 30 minutes or so....
sometimes I get so mad at everything....I have told my neurologist and he stated it is my thyroid fluctuating...
well I think that is enough of a update...
in the next few weeks I will be going back to the neurologist and seeing another specialist, a neuropsychologist......
I got one of my teeth pulled, it has been bothering me for a while now...finally got it pulled...
I am working on a counted cross stitch and the last few days I have felt scattered brain on it...so yesterday I didn't work on it...
I have been having issues sleeping some nights as well...the last two nights I don't get to sleep until after midnight sometimes 1 or 2 in the morning....and sometimes I don't even take a nap during the day....when I do it is usually just 30 minutes or so....
sometimes I get so mad at everything....I have told my neurologist and he stated it is my thyroid fluctuating...
well I think that is enough of a update...
in the next few weeks I will be going back to the neurologist and seeing another specialist, a neuropsychologist......
Saturday, July 23, 2016
update, scattered
I so need to start getting titles on these....maybe just should calling the them up dates.....yes, i changed the title
Where oh where do i begin on this update...hmmmmm...
I now have insurance, yay...im not going into details about it , at least I dont think I will...
I have had issues about how old I am....I have never remember the age...I noticed this a couple of days ago when i was visiting with my aunt at a beauty shop...( my oldest was doing her hair for a job )..My aunt is 2 years older then me...( whew...not going to say how old she is or me, lets just say im no spring chicken).
While taking a walk down the road, my hubby came and picked me up in our truck...while he was coming down the road...I was like who coming now...I didnt recognized the truck until i was able to see him sitting in the drivers seat....
I often wondered why i can remember some things that I dont remember.....
I have had some burning feelings in my head...then my legs start doing their thing, by that I mean they go/i walk funny...at least i think i do...
I have noticed as well sometimes if i sit a certain way ...my leg/feet go discolored...hmmm old people`s feet...I really dont consider myself old...but sometimes i do feel old...but not old enough to have old peoples feet...lol
I have been having issues with thumb and a couple of fingers feeling like i smashed them with a hammer...i hate when they feel this way...
I go and get my thyroid tested again next week....yay labs ( not really)!
I have also noticed that sometimes at night when i lay down i have tremors...at least i feel my arms trembing...dont know if it is physical or not....
well that is all i can think of and i want to get this posted...
Where oh where do i begin on this update...hmmmmm...
I now have insurance, yay...im not going into details about it , at least I dont think I will...
I have had issues about how old I am....I have never remember the age...I noticed this a couple of days ago when i was visiting with my aunt at a beauty shop...( my oldest was doing her hair for a job )..My aunt is 2 years older then me...( whew...not going to say how old she is or me, lets just say im no spring chicken).
While taking a walk down the road, my hubby came and picked me up in our truck...while he was coming down the road...I was like who coming now...I didnt recognized the truck until i was able to see him sitting in the drivers seat....
I often wondered why i can remember some things that I dont remember.....
I have had some burning feelings in my head...then my legs start doing their thing, by that I mean they go/i walk funny...at least i think i do...
I have noticed as well sometimes if i sit a certain way ...my leg/feet go discolored...hmmm old people`s feet...I really dont consider myself old...but sometimes i do feel old...but not old enough to have old peoples feet...lol
I have been having issues with thumb and a couple of fingers feeling like i smashed them with a hammer...i hate when they feel this way...
I go and get my thyroid tested again next week....yay labs ( not really)!
I have also noticed that sometimes at night when i lay down i have tremors...at least i feel my arms trembing...dont know if it is physical or not....
well that is all i can think of and i want to get this posted...
Wednesday, July 6, 2016
Title...still no title....
The other day( notice when I now say the other day it could have happened last week, lol)...I was coming out of Walmart, yes I shop there...I put my groceries in the car ...and then proceeded to take the cart and park it in the corral..needless to say I still had my purse in the cart...and I happened to look at the cart,...thankfully I did ...I didn't realize my purse was still in the cart....
On the way anymore when someone is with me and when they are not...I have to ask the person with me if I put the things that I got in the car or not...sometimes I ask more then once...cause I honestly don't remember putting them in the car...when someone is not with me...I ask myself, yes I talk to myself sometimes...I have almost stopped the car or rather pull over and check...
last night we did get rain needless to say I thought I rolled up the window in the car...wait did we get rain last night....I think we got a nice shower this morning...anyways ...I remember getting in the car last night and I thought I rolled up the window...the window was still down this morning..
On the way anymore when someone is with me and when they are not...I have to ask the person with me if I put the things that I got in the car or not...sometimes I ask more then once...cause I honestly don't remember putting them in the car...when someone is not with me...I ask myself, yes I talk to myself sometimes...I have almost stopped the car or rather pull over and check...
last night we did get rain needless to say I thought I rolled up the window in the car...wait did we get rain last night....I think we got a nice shower this morning...anyways ...I remember getting in the car last night and I thought I rolled up the window...the window was still down this morning..
Tuesday, June 21, 2016
Title....hmm...no title...
That`s right I really don't want to have title....
Yesterday My oldest daughter and I went to town...We had to take the books to the library and print out a couple of things on the computer...then to get two cinder blocks...and then on to Walmart...that is where the memory fades somewhat...She was getting something somewhere in the store, waiting for the clerk to help her and I went on and checked out ...and thought hey now I can go on home and since no one is with me....then a few minutes later it dawned on me ...that My oldest was with me...on the way on to the car I kept telling myself that the oldest was with me...I put groceries in the car and the put cart away...all of this time I was thinking I needed to go get in the car and then just go home ...while saying to myself that my oldest was with me....
Then on the way home...about a few miles out of town( yes we live out of town)...In my mind I was like Where have I been ,what did I get at the store...
I thought I would just post this...
Yesterday My oldest daughter and I went to town...We had to take the books to the library and print out a couple of things on the computer...then to get two cinder blocks...and then on to Walmart...that is where the memory fades somewhat...She was getting something somewhere in the store, waiting for the clerk to help her and I went on and checked out ...and thought hey now I can go on home and since no one is with me....then a few minutes later it dawned on me ...that My oldest was with me...on the way on to the car I kept telling myself that the oldest was with me...I put groceries in the car and the put cart away...all of this time I was thinking I needed to go get in the car and then just go home ...while saying to myself that my oldest was with me....
Then on the way home...about a few miles out of town( yes we live out of town)...In my mind I was like Where have I been ,what did I get at the store...
I thought I would just post this...
Wednesday, June 15, 2016
thyroid..memory..
Well I am back up on the level I was at on my thyroid med...finally my doctor sent me a message about upping the dosage.....
now lets see ...memory...what can I say about this...hmmm, my memory....
the other day I did forget how to get to my moms house....I stated out loud where to turn though....it was for a brief seconds I didn't know how to get there...
Then today ...I was getting my pic ( trying to get pics for every flower/plant in garden)...I didn't remember what pics I needed from my camera.....
During memorial day I didn't know how to get to a graveyard in which I had been before but it has been a while since I was there....
Well enough for now ....
now lets see ...memory...what can I say about this...hmmm, my memory....
the other day I did forget how to get to my moms house....I stated out loud where to turn though....it was for a brief seconds I didn't know how to get there...
Then today ...I was getting my pic ( trying to get pics for every flower/plant in garden)...I didn't remember what pics I needed from my camera.....
During memorial day I didn't know how to get to a graveyard in which I had been before but it has been a while since I was there....
Well enough for now ....
Monday, June 6, 2016
Thyroid test...
Well it is time again for the labs to be done....different doctor ....added more tests ....Tsh is 3.11...hmmm back to being hypo....still waiting for the other ones to come in
on another note....still having memory issues....the other day I was out in the garden...and looked in our driveway and didn't know who the cars belong to....I have been having angry issues...this morning after taking the youngest to summer school ...I was like where am I...how do I get home....maybe if I follow this road it will come back to me....and it did...I am so glad it did....
now to go with my morning....and day...busy day....
on another note....still having memory issues....the other day I was out in the garden...and looked in our driveway and didn't know who the cars belong to....I have been having angry issues...this morning after taking the youngest to summer school ...I was like where am I...how do I get home....maybe if I follow this road it will come back to me....and it did...I am so glad it did....
now to go with my morning....and day...busy day....
Saturday, June 4, 2016
Anger..
Anger , What can I say about it....hmmmm
I get angry sometimes, I really don't know why ....I am just angry...I cant explain it...today is was angry...don't know why...I want to break every dish in the house....( I didn't though, but I wanted to)...I have read on sites that this is normal...I don't want this to be normal...I am a good person...I don't hardly get mad at anything
I just get angry...I don't know why...I cant explain why...I am just angry...
I hate when I feel this way.....This is not me...I am not a cranky sorta of person....I am a nice person...nice to all living things...but when these periods of anger happen....I feel like i am not me
I get angry sometimes, I really don't know why ....I am just angry...I cant explain it...today is was angry...don't know why...I want to break every dish in the house....( I didn't though, but I wanted to)...I have read on sites that this is normal...I don't want this to be normal...I am a good person...I don't hardly get mad at anything
I just get angry...I don't know why...I cant explain why...I am just angry...
I hate when I feel this way.....This is not me...I am not a cranky sorta of person....I am a nice person...nice to all living things...but when these periods of anger happen....I feel like i am not me
Friday, May 20, 2016
fishing today
We went fishing today...I felt like I needed it...a break from everyday...On the way I hoped I still remember how to fish...I grew up fishing...loved it actually...I remember how to bait my hook ,remember how to throw the line in....We first tried one spot..... We had to step off a embankment to get to the bank which was muddy. I felt like I was going to fall of maybe it was fear of falling....I didn't fall...not much luck at that spot so
We did walk a little to try another spot in which they wasn't biting that good today...I was slow toward the end walking back to the truck...
then we tried another spot and I caught one....I was afraid of falling there as well....I had locked my purse and camera in the truck...when I got home I got my camera and purse and took it inside...I checked the fish over and fried them along with some tators....then after supper walked my garden( love to walk my garden, have tempted to walk it at night , sometimes I feel the need to walk or wander)...anyways...I told my hubby I need to get my purse and camera out of the truck...He said you already took it in the house...
I still don't remember taking in the house...I still feel like I need to go get my purse and camera out of the truck.......The joys of not remembering things...the joys of telling stories of over and over again...cause I don't really remember telling them ....the joy of this disease...
Have I stated I hate this disease....I do.....well that is enough for now
We did walk a little to try another spot in which they wasn't biting that good today...I was slow toward the end walking back to the truck...
then we tried another spot and I caught one....I was afraid of falling there as well....I had locked my purse and camera in the truck...when I got home I got my camera and purse and took it inside...I checked the fish over and fried them along with some tators....then after supper walked my garden( love to walk my garden, have tempted to walk it at night , sometimes I feel the need to walk or wander)...anyways...I told my hubby I need to get my purse and camera out of the truck...He said you already took it in the house...
I still don't remember taking in the house...I still feel like I need to go get my purse and camera out of the truck.......The joys of not remembering things...the joys of telling stories of over and over again...cause I don't really remember telling them ....the joy of this disease...
Have I stated I hate this disease....I do.....well that is enough for now
Monday, May 16, 2016
a few good days...
I am sorry about not posting but have been very busy .....two graduates, one from college and one from 8th grade...besides trying to do garden work as well somewhere in between there
I have had a few issues like forgetting where I parked the car, forgetting what I planted where...
I try and think of things and picture them in my mind I cant see them at all like I used to.I have noticed that sometimes I repeat words as well..
I have met a few people and do not remember their names. My legs still do their thing almost every day to some extent, I mean they go down somewhat....I have noticed that when I hang on to something ( like a grocery cart) for the most part they don't do so bad....or maybe that is me thinking they don't . But the other day my left foot didn't want to step right while holding on to the grocery cart...it kinda of stepped baby step and stopped...grr it is hard to explain......
I have been to Silver Dollar city with my 8th grader whew 9th grader should I say...and I was totally lost kept saying 1 and 2...where I parked at...I rode a few rides ...the tea cup one and the ride stopped I knew I shouldn't have rode it...my eyes and head was spinning and I had a headache...
I took my walker out for the first time...it helped me climb those hills ( I don't know if you all have been to SDC but they have on killer hill that is hard to walk up .
needless to say I am glad some other adults came ...my 8th grader loves to ride roller coasters, they rode with her.....and now they know about the spots on my brain....and that sometimes my feet don't want to work....didn't tell them about the dementia thing...they kinda of looked at me at times at least I think they did like she doesn't need that walker...yes I do...need it sometimes....this is the first time of me using it...well enough about it
Well I finally got my neuro pysch appointment after my neuro doctor appoint...
Sometimes when I am out in my garden and I feel scatter brain about where to pull weeds...I start off pulling in one area and then go to a different area and pull or start doing something else entirely like planting....
well that is enough for now
I have had a few issues like forgetting where I parked the car, forgetting what I planted where...
I try and think of things and picture them in my mind I cant see them at all like I used to.I have noticed that sometimes I repeat words as well..
I have met a few people and do not remember their names. My legs still do their thing almost every day to some extent, I mean they go down somewhat....I have noticed that when I hang on to something ( like a grocery cart) for the most part they don't do so bad....or maybe that is me thinking they don't . But the other day my left foot didn't want to step right while holding on to the grocery cart...it kinda of stepped baby step and stopped...grr it is hard to explain......
I have been to Silver Dollar city with my 8th grader whew 9th grader should I say...and I was totally lost kept saying 1 and 2...where I parked at...I rode a few rides ...the tea cup one and the ride stopped I knew I shouldn't have rode it...my eyes and head was spinning and I had a headache...
I took my walker out for the first time...it helped me climb those hills ( I don't know if you all have been to SDC but they have on killer hill that is hard to walk up .
needless to say I am glad some other adults came ...my 8th grader loves to ride roller coasters, they rode with her.....and now they know about the spots on my brain....and that sometimes my feet don't want to work....didn't tell them about the dementia thing...they kinda of looked at me at times at least I think they did like she doesn't need that walker...yes I do...need it sometimes....this is the first time of me using it...well enough about it
Well I finally got my neuro pysch appointment after my neuro doctor appoint...
Sometimes when I am out in my garden and I feel scatter brain about where to pull weeds...I start off pulling in one area and then go to a different area and pull or start doing something else entirely like planting....
well that is enough for now
Wednesday, May 4, 2016
Still waiting....
I am still waiting for the neuropsychologist to call to make an appointment. I started the 25 mcg on sunday morning...I have lost about 4 pounds , then I regained it back....
I have started my shakes at night as well sometimes...only when I lie down to go to bed and only my left arm ...
I started this post back in the end of April....so hmmm what has happen since then...I really don't remember anything specific...except that I have been gardening some and have found my church home...in that I mean where I feel like I am family( home)...that is all I can be specific about ...today while walking out into the garden to see if I have any new blooms ( irises are in bloom and have new ones each day)....I looked at one and ooohhhh how pretty I need to get a pic of that one( I am starting a scrap book of my garden, doctor told me to find interests )....Well I thought it was a new one that had bloomed....then later I realized that I had already taken a pic and seen it bloom yesterday....
another thing happen as well didn't remember it until just now-----My Church had a Fish fry this past weekend and I took mashed potatoes and gravy...while cooking the gravy...I just kept stirring the gravy and stirring and then I would check the potatoes....then go back to check on the gravy....this went on for about 5-10 minutes.....the potatoes were getting tender so I told my oldest to come and stir the gravy....and noticed that I didn't have the fire on under the gravy....
well that is all for now
I have started my shakes at night as well sometimes...only when I lie down to go to bed and only my left arm ...
I started this post back in the end of April....so hmmm what has happen since then...I really don't remember anything specific...except that I have been gardening some and have found my church home...in that I mean where I feel like I am family( home)...that is all I can be specific about ...today while walking out into the garden to see if I have any new blooms ( irises are in bloom and have new ones each day)....I looked at one and ooohhhh how pretty I need to get a pic of that one( I am starting a scrap book of my garden, doctor told me to find interests )....Well I thought it was a new one that had bloomed....then later I realized that I had already taken a pic and seen it bloom yesterday....
another thing happen as well didn't remember it until just now-----My Church had a Fish fry this past weekend and I took mashed potatoes and gravy...while cooking the gravy...I just kept stirring the gravy and stirring and then I would check the potatoes....then go back to check on the gravy....this went on for about 5-10 minutes.....the potatoes were getting tender so I told my oldest to come and stir the gravy....and noticed that I didn't have the fire on under the gravy....
well that is all for now
Saturday, April 23, 2016
Thyroid med
Well I got of hold of my GP and she lowered my thyroid med down to 25mcg...instead of taking 50mcg...Then recheck in 6 weeks.....so I will be starting the lower dose tomorrow...
I had some memory issues yesterday...for the life of me I cant remember the details of it....I know it involved my hubby had asked about something...or we were talking about something and I really didn't know what he was talking about for a few seconds , but I went along with it....and acted like I knew exactly what he was talking about.
On Thurs night I went to church...and their was a older woman and I admitted I did watch her ....I came upon the realization of taking this disease as it comes...and when I start getting really bad of the forgetting stuff...I will still be me...even though I might not act like it...but I will still have me in there somewhere...I maybe still be reached by the holy spirit...
well that is all for now
I had some memory issues yesterday...for the life of me I cant remember the details of it....I know it involved my hubby had asked about something...or we were talking about something and I really didn't know what he was talking about for a few seconds , but I went along with it....and acted like I knew exactly what he was talking about.
On Thurs night I went to church...and their was a older woman and I admitted I did watch her ....I came upon the realization of taking this disease as it comes...and when I start getting really bad of the forgetting stuff...I will still be me...even though I might not act like it...but I will still have me in there somewhere...I maybe still be reached by the holy spirit...
well that is all for now
Wednesday, April 20, 2016
Neurologist visit
Well today I went to see the neurologist ...first thing he stated no magic pill...asked how things were going...told him about the incident that happen the other day with the feed...and that I have good days and bad days...he said I got to expand my interests so they are more good days then bad...sending me to a neuropsychologist...to see where I stand...I have mild dementia he stated ...but don't know if that is from the depression that I sometimes feel...( I feel depressed duh doctor told me I have dementia/Alzheimer's)...so I have to wait for them to call me to schedule a appointment...then also stated I now have hyper thyroid and contact my primary about the thyroid level issue and whether or not she wanted to change my dosage...and then see him again in Grr I forgot was It 3 or was it 4 months from now....He did tell me I had mild form of dementia
Well that is all for now
Well that is all for now
Tuesday, April 19, 2016
memory issues..
Today I had to get some rabbit pellets for the rabbits...yes we have rabbits, a few...well after I left the feed store...I thought did I get the pellets...I almost stopped and looked in the trunk to make sure...and I still wondered about it until I got home after getting a few groceries.....I wonder if this is just a thyroid issue or am I loosing my mind....
Sorry about the short post but I just couldn't just leave it 13 posts for this blog...
I was thinking yesterday ...about my dad and my grandparents...what did they look like ? what was they like?....I really didn't remember much about what they looked like , except for some few details...My grandpa was a Pentecostal preacher...I was trying to remember him preaching...I had a hard time of it remembering of him preaching......well enough for now
Sorry about the short post but I just couldn't just leave it 13 posts for this blog...
I was thinking yesterday ...about my dad and my grandparents...what did they look like ? what was they like?....I really didn't remember much about what they looked like , except for some few details...My grandpa was a Pentecostal preacher...I was trying to remember him preaching...I had a hard time of it remembering of him preaching......well enough for now
Sunday, April 17, 2016
upcoming neurolgist appt
This week I have a neurologist appointment..
I am kinda of nervous about it..I am hoping that I don't get referred back to my primary again
I know there is something going on with me...
just don't want to be referred back to the primary...I want to know if for sure I have the beginnings of some sorta of dementia
I think I need to know and my family needs to know ...so maybe we will know what to expectThis weekend has been a good one..still have the memory issues...like I know I went to town on Sat ...but really don't remember all the details...I rehome some plants...
I didn't take my thyroid med yesterday, but took one today...I was so tired today...
took a nap...and sat in my garden wondering what to do next...I did do some digging in it today and yesterday....I love my garden ...I could just wonder around it all day...but I do need rest...
Tonight I noticed how weak I was getting in the back of the truck ( I was helping hubby load something into the back of it...) I was barely able to get into the back of it...
I have also noticed that sometimes now my sentences are alittle mixed up...and cant spell sometimes as well, not that I am a good speller...and I cant remember somethings in the past , like what my house looked like when I lived by the lake....
Well that is enough for now...Will try and do a post after my neuro appt
Wednesday, April 13, 2016
thyroid med...
Yes, I am posting again on thyroid med...
My thyroid medicine stinks.....I mean it has a foul odor to it.......It really does stink ..I have to almost hold my nose every time I refill my 7 day pill organizer. I have called the pharmacy and asked if it suppose to smell and they told me yes...they supposedly looked on the bottle.....
Since my level at least in my opinion is low( TSH) ...I wonder if the med is too strong....or something wrong with the meds...Who knows...just wondering about my meds and the thought occurred to me ..
well...have you ever had issues ..with if you grab the right type of oil and if is oil in fact...( motor oil)...I know which is motor oil and which is transmission fluid,,,This morning my hubby states that I got transmission fluid instead of the oil he had me get for the car...I thought I know for sure I got oil ( At the time I wasn't sure..I kept checking on the bottle to make sure it was oil...
I guess I will still have my moments when I wonder about things like the example above...
My thyroid medicine stinks.....I mean it has a foul odor to it.......It really does stink ..I have to almost hold my nose every time I refill my 7 day pill organizer. I have called the pharmacy and asked if it suppose to smell and they told me yes...they supposedly looked on the bottle.....
Since my level at least in my opinion is low( TSH) ...I wonder if the med is too strong....or something wrong with the meds...Who knows...just wondering about my meds and the thought occurred to me ..
well...have you ever had issues ..with if you grab the right type of oil and if is oil in fact...( motor oil)...I know which is motor oil and which is transmission fluid,,,This morning my hubby states that I got transmission fluid instead of the oil he had me get for the car...I thought I know for sure I got oil ( At the time I wasn't sure..I kept checking on the bottle to make sure it was oil...
I guess I will still have my moments when I wonder about things like the example above...
Friday, April 8, 2016
issues...
Yes I am still having issues with lots of things now...for instance last night...while fixing supper I forgot about the biscuits I had in the oven and just happen to look back in the utility room ( my oven don't work on my stove so I use a toaster oven for all of my baking)...and noticed that the biscuits were quite brown..I put too much grease in the scrambled eggs...I just pour out the eggs and grease and all...the dogs /ducks/chickens will get the treat.
I also lost track of time....really didn't realize my hubby had gone and got my daughter from school...didn't really know where he went...then I stopped and thought oh yea...he went to go get our daughter....
Both of them issues happened yesterday plus a couple more I am sure, but I just don't remember them
Today My other daughter got us donuts and I felt as though I should be carrying something out...
Then I went to town and for the life of me couldn't remember the lady name I was suppose to meet with some Rose of Sharon starts......then while walking in Walmart...I cant explain how I felt for awhile...almost lost I guess that is how I would describe it......I am easily aggravated lately...
well that's it for now
Monday, April 4, 2016
trip to Branson
This is a easy place to get lost...so I am sure I wasn't alone...but thankfully no one noticed that I felt a little lost.....if only for a few brief seconds, that was on Saturday,
Yesterday I felt like going to take a walk in the woods to look for the moral mushrooms...but I didn't I just wondered around the yard and then went to a friends house for some plants that she gave me
then I was fine after that...I planted them of course...
Today is Walmart, yes I do shop there for some things...I felt lost I really didn't know what I was looking for or where I was for a few brief moments.......I really don't remember going to Walmart, but I know I did go, because the onions sets were on clearance and I picked up some...I had met someone to rehome some plants....
well that is all for now
Yesterday I felt like going to take a walk in the woods to look for the moral mushrooms...but I didn't I just wondered around the yard and then went to a friends house for some plants that she gave me
then I was fine after that...I planted them of course...
Today is Walmart, yes I do shop there for some things...I felt lost I really didn't know what I was looking for or where I was for a few brief moments.......I really don't remember going to Walmart, but I know I did go, because the onions sets were on clearance and I picked up some...I had met someone to rehome some plants....
well that is all for now
Friday, April 1, 2016
Thyroid med...
Well I tried to stop cold turkey the thyroid med....I did it for two days...needless to say I am back on it...I just felt angry at the world., and really didn't feel that great...I also had a memory issue don't know if it was related to the stopping of the thyroid med or not....I was going to get my oldest from school and for a brief moment really didn't know where I was, where I was going......So I started taking them again the next morning....
I had a brief episode today while looking for the elusive moral mushroom in the woods....I didn't remember where I was at...this was only for a brief second or two...and really didn't know how to get out of the place I was in ...brush all around me...and I kept seeing sticks and thinking they was snakes
I feel better now...
I had a brief episode today while looking for the elusive moral mushroom in the woods....I didn't remember where I was at...this was only for a brief second or two...and really didn't know how to get out of the place I was in ...brush all around me...and I kept seeing sticks and thinking they was snakes
I feel better now...
Tuesday, March 29, 2016
eye appointment
Well I guess I need glasses went to the eye doctor today ( referral from primary for headaches)...So I guess I will somehow get them....the eye doctor stated that might be the problem causing the back of the head to hurt , but not for sure...but it might help....Asked if I had to see a neuro yet, I told him , yes....
Today or rather this morning I decided to hold back my thyroid med to see if that helped with the memory...I will try it for a few days and see if that helps.
On the way home...I was thinking where did I go, what was the scenery like...hmmmm...Where did my oldest go( I take her to school each morning)....I really don't remember...I know I did have a appointment today...I remember him telling me I needed glasses..
well that is all for now
Today or rather this morning I decided to hold back my thyroid med to see if that helped with the memory...I will try it for a few days and see if that helps.
On the way home...I was thinking where did I go, what was the scenery like...hmmmm...Where did my oldest go( I take her to school each morning)....I really don't remember...I know I did have a appointment today...I remember him telling me I needed glasses..
well that is all for now
Monday, March 28, 2016
Remembering...
My oldest daughter and I went to town today...For a brief moment ...I really didn't realize where I was for a brief second...then on the way home...I was like to myself...Where am I?...Where did I go?...it only happened for a brief seconds...then I remember I went to town I think...I knew I had gotten groceries......I did make it home...
Since my TSH level is low ...I am thinking that maybe I should withhold my thyroid meds for a few days and see if that makes a difference in my memory...This is just my thinking...then if he suggests that I not take the thyroid meds for awhile I can let him know that is what I did and whether it helped or not......
I have been remembering the past ...things I did when I was growing up...don't know if this is part of the disease or not...
Well that is all for now...
Since my TSH level is low ...I am thinking that maybe I should withhold my thyroid meds for a few days and see if that makes a difference in my memory...This is just my thinking...then if he suggests that I not take the thyroid meds for awhile I can let him know that is what I did and whether it helped or not......
I have been remembering the past ...things I did when I was growing up...don't know if this is part of the disease or not...
Well that is all for now...
Saturday, March 26, 2016
Neuro visit
I had my neuro visit this past week for the memory loss .This is what I remembered from that visit, he ordered labs ( thyroid, B12, B1)...then he kept saying no miracle drug for this...He had me to some verbal tests...in which he said they was pretty good...walk around, and do some hand exercises...strength things...I am suppose to back in three weeks....I see the eye doctor next week
While driving back home...I did for a brief moment forget where I was, I mean what street I was on...maybe it was a few seconds...my oldest was with me and really didn't realize it I don't think....
I do believe he also stated to stay active with my hobbies and maybe try a new hobby. I already garden, it is spring time...so that is where I am most of the day until I get too tired or want a break from it....I quilt some...right now I am trying to do a block a week...I really don't think I did one last week...but I did work on one....... A flower basket one using hexagons, ...I crochet...only at time while watching TV...
Well that is all I can remember to post right now.
While driving back home...I did for a brief moment forget where I was, I mean what street I was on...maybe it was a few seconds...my oldest was with me and really didn't realize it I don't think....
I do believe he also stated to stay active with my hobbies and maybe try a new hobby. I already garden, it is spring time...so that is where I am most of the day until I get too tired or want a break from it....I quilt some...right now I am trying to do a block a week...I really don't think I did one last week...but I did work on one....... A flower basket one using hexagons, ...I crochet...only at time while watching TV...
Well that is all I can remember to post right now.
Thursday, March 24, 2016
neorolgist appointment
Well tomorrow I go to the first neurologist appointment for Alzheimer's/dementia...I really don't know what to expect but I am nervous about it some...I have visited the same doctor back when they thought I had MS,,, but now it will be different...I have gotten a call from the neuro office today wondering about insurance...I have none but thankfully I do have a financial assistance thru the hospital/doctor offices..
My oldest daughter maybe going with me tomorrow...if it don't count against her at school I am ok with her going with me....she is in college...almost time for her to graduate...I think she will be one of the persons I put on my form to make health decisions for me when I can no longer make them for myself....I am not ready for this part of this disease.....
My oldest daughter maybe going with me tomorrow...if it don't count against her at school I am ok with her going with me....she is in college...almost time for her to graduate...I think she will be one of the persons I put on my form to make health decisions for me when I can no longer make them for myself....I am not ready for this part of this disease.....
Sunday, March 20, 2016
making Coffee
when hubby is at work I make coffee and drink 2-3 cups in the morning....I don't like to drink coffee other then my own most of the time...but sometimes will have a frappe of a special coffee drink similar to that.
This morning like was any other...I put the filter in the coffee pot and then proceeded to put coffee in the filter....Then I turned it on.....then hubby called and I looked in the kitchen( phone is in the front room and I can see the coffee pot from the where the phone is....)I wondered to myself and hubby on the phone...I don't think I clean out the pot...so he said go and check....I didn't clean out the pot ...I didn't even add water to the coffee maker....so I turned it off...poured out the old coffee and rinsed out the pot and then added water to the coffee maker. It sprewed at me for adding water to it after I had turned on and then off...then after I did that...I turned it back on and a few minutes later I did enjoy my usual cups of coffee.
I wonder if it was the Alzheimer's or a typical mistake...I have don't this before but I added the water ..it was a different coffee maker though, where really didn't need to rinse out the pot we used another method of putting the water in....
This morning like was any other...I put the filter in the coffee pot and then proceeded to put coffee in the filter....Then I turned it on.....then hubby called and I looked in the kitchen( phone is in the front room and I can see the coffee pot from the where the phone is....)I wondered to myself and hubby on the phone...I don't think I clean out the pot...so he said go and check....I didn't clean out the pot ...I didn't even add water to the coffee maker....so I turned it off...poured out the old coffee and rinsed out the pot and then added water to the coffee maker. It sprewed at me for adding water to it after I had turned on and then off...then after I did that...I turned it back on and a few minutes later I did enjoy my usual cups of coffee.
I wonder if it was the Alzheimer's or a typical mistake...I have don't this before but I added the water ..it was a different coffee maker though, where really didn't need to rinse out the pot we used another method of putting the water in....
Saturday, March 19, 2016
I Hate this disease...
I hate this disease in the way it makes me feel...I know I probably will be posting this topic again...
I hate that one day I will not be able to take care of myself...
I hate that I will one day be a burden to my family...
.I hate that one day someone will have to take care of me
I hate that one day my garden will be nothing but weeds( I love my gardens)
I hate this disease is robbing me of my family
I hate this disease is going leave us financial insecure( not that we were really secure anyway)
I hate that my husband really don't know what is going on and don't want to know
I hate that I will be put in a Nursing home ( my husband has already said he wouldn't come and visit me he has to work)
I hate that one day soon I will have to ask for help
I hate that one day soon I will no longer be able to drive
I hate that sometimes I question about things....( like for instance how do I get back home when I take a walk down the road)( What did I plant?, Where am I, How old am I)
Well I think that is enough hates right now....
I hate that one day I will not be able to take care of myself...
I hate that I will one day be a burden to my family...
.I hate that one day someone will have to take care of me
I hate that one day my garden will be nothing but weeds( I love my gardens)
I hate this disease is robbing me of my family
I hate this disease is going leave us financial insecure( not that we were really secure anyway)
I hate that my husband really don't know what is going on and don't want to know
I hate that I will be put in a Nursing home ( my husband has already said he wouldn't come and visit me he has to work)
I hate that one day soon I will have to ask for help
I hate that one day soon I will no longer be able to drive
I hate that sometimes I question about things....( like for instance how do I get back home when I take a walk down the road)( What did I plant?, Where am I, How old am I)
Well I think that is enough hates right now....
Friday, March 18, 2016
another post...Scared...
When I first started having issues ...my hubby stated he couldn't handle me having Alzheimer's...that is one thing he cant handle......We was thinking Parkinson's...MS...not Alzheimer's...
I did get a copy of my MRI scans and then went and googled MS MRI scans...mine looked nothing like theirs...then the Diagnosis Small Vessel disease was found out.....I googled it...nothing but dementia came up on my search.....I then googled images of small vessel disease MRI scans....just what my scans looked like...it cant be dementia...I felt...no...I wanted no...then after my last visit to the doctor...she confirmed what I had suspected...( I am a LPN)...
I sorta know what is going to take place, but not really...I know the last stages......not the early stages...My Paternal Grandmother had Alzheimer's...I know it is heredity.
I am scared of not knowing my children , my husband...I have apologized in advance., before I knew...but deep down I kinda knew....
I am scared that I wont get to see and realize my both daughters getting married...having babies..being a grandmother...I am scared of not being there for them when they need me...my daughters are 18 and 14......Everytime I try and talk to my husband ...he don't want to hear any of it...how I feel...I seriously think he has health issues as well. He has a lot of headaches...I know he has stress....I am scared for him as well...Now I am crying ...tears on the edge of my eyes...
Why oh why...?We are not ones to question, I must remember this...
I did get a copy of my MRI scans and then went and googled MS MRI scans...mine looked nothing like theirs...then the Diagnosis Small Vessel disease was found out.....I googled it...nothing but dementia came up on my search.....I then googled images of small vessel disease MRI scans....just what my scans looked like...it cant be dementia...I felt...no...I wanted no...then after my last visit to the doctor...she confirmed what I had suspected...( I am a LPN)...
I sorta know what is going to take place, but not really...I know the last stages......not the early stages...My Paternal Grandmother had Alzheimer's...I know it is heredity.
I am scared of not knowing my children , my husband...I have apologized in advance., before I knew...but deep down I kinda knew....
I am scared that I wont get to see and realize my both daughters getting married...having babies..being a grandmother...I am scared of not being there for them when they need me...my daughters are 18 and 14......Everytime I try and talk to my husband ...he don't want to hear any of it...how I feel...I seriously think he has health issues as well. He has a lot of headaches...I know he has stress....I am scared for him as well...Now I am crying ...tears on the edge of my eyes...
Why oh why...?We are not ones to question, I must remember this...
my journey so far...
This blog will be able my health. Be prepared this will be a long post...I will try and keep it short, but then again ...I want to post most of the story...
It started last year...I started having back pain...lower back pain...when I walked while going hunting for the mysterious morel mushroom.....then I started walking funny--What I mean by walking funny...I felt like my legs were going down....
I went on thinking it would eventually go away...not...Then one night my youngest was trying to tickle my feet and I didn't feel a thing...my left leg kinda of felt numb...
So I decided to go to my doctor, or rather a local clinic that has a sliding fee scale ( I have no insurance...there are many of us out here that don't have insurance..., I don't want to get started on that soapbox)...The doctor put me on a med, Neurontin and stated I probably have a neurological disorder ,maybe a thyroid issue...so I went on and took the Neurontin...
then it seemed like my symptoms were getting worse., after a few months..I felt like sometimes my memory wasn't as good as it should be...my back still hurt at times...sometimes the wrong word would come out....tremors at night and other times .so I went back and seen someone else at the clinic...someone that had seen me before...She stated I need a MRI of head, neck , back.....and she wanted to do labs...
so labs were done and the MRI was not done yet ...since like I stated earlier -no insurance
Labs came back and my thyroid was out of whack...so thyroid med , plus Naproxen...
meds helped...
So then I filled out a financial assistance form at a local hospital...I got my MRI...and something didn't look right...so was sent to a neurologist...he order more MRIs and a lumbar puncture...they thought I had MS( Multiple Sclerosis), labs....the LP came back good, labs were good, ...follow-up with doctor ...you don't have MS , You have Small vessel disease of the brain....he referred me back to my primary, ...I seen her a few more times...
then the last time I seen her...she was very rude to me...so I changed doctors....
I seen the new doctor who does seem nice the first time I seen her and everyone was nice....
I told her of my back pain ..she sent me to a Physical Therapy Eval...I also told her the back of my head hurt when I touched it, or leaned on anything...so will be going to a eye doctor to check my eyes..
The therapist stated I needed 6 weeks of therapy...so once a week I went to therapy...for the past 6 weeks...
A few weeks ago, I messaged the new doctor of my memory issues...and she stated I needed to be seen....So I went to go and seen her and told her of the memory issues...and that wrong words were coming out more often...so she had me do a series of tests...and remember 3-4 words...say the words, then had me draw a couple of things...
Asked me if I had seen the neurologist yet( She was going to referred me to him after the eye check up)...I stated no...so she stated then that I had Alzheimer's, possible Alzheimer's..., From the small Vessel disease of the brain...so I will be sending you the memory clinic. ASAP...She followed me out to the waiting room after she had asked about financial situation.....Thankful I have the financial assistance or I would not be going to the doctor..
the next week later...still no call from the Memory clinic...I googled it and then called the phone number that was on it ...it was no longer in service....so I called doctor and let them know I hadn't heard anything......nothing no return phone calls a week later...then I messaged the doctor ...I got a response from the doctor office...the Memory clinic is no longer open it is part of the neurology departments......
They finally called I got a appointment next week...
This is the short version of my battle so far...
It started last year...I started having back pain...lower back pain...when I walked while going hunting for the mysterious morel mushroom.....then I started walking funny--What I mean by walking funny...I felt like my legs were going down....
I went on thinking it would eventually go away...not...Then one night my youngest was trying to tickle my feet and I didn't feel a thing...my left leg kinda of felt numb...
So I decided to go to my doctor, or rather a local clinic that has a sliding fee scale ( I have no insurance...there are many of us out here that don't have insurance..., I don't want to get started on that soapbox)...The doctor put me on a med, Neurontin and stated I probably have a neurological disorder ,maybe a thyroid issue...so I went on and took the Neurontin...
then it seemed like my symptoms were getting worse., after a few months..I felt like sometimes my memory wasn't as good as it should be...my back still hurt at times...sometimes the wrong word would come out....tremors at night and other times .so I went back and seen someone else at the clinic...someone that had seen me before...She stated I need a MRI of head, neck , back.....and she wanted to do labs...
so labs were done and the MRI was not done yet ...since like I stated earlier -no insurance
Labs came back and my thyroid was out of whack...so thyroid med , plus Naproxen...
meds helped...
So then I filled out a financial assistance form at a local hospital...I got my MRI...and something didn't look right...so was sent to a neurologist...he order more MRIs and a lumbar puncture...they thought I had MS( Multiple Sclerosis), labs....the LP came back good, labs were good, ...follow-up with doctor ...you don't have MS , You have Small vessel disease of the brain....he referred me back to my primary, ...I seen her a few more times...
then the last time I seen her...she was very rude to me...so I changed doctors....
I seen the new doctor who does seem nice the first time I seen her and everyone was nice....
I told her of my back pain ..she sent me to a Physical Therapy Eval...I also told her the back of my head hurt when I touched it, or leaned on anything...so will be going to a eye doctor to check my eyes..
The therapist stated I needed 6 weeks of therapy...so once a week I went to therapy...for the past 6 weeks...
A few weeks ago, I messaged the new doctor of my memory issues...and she stated I needed to be seen....So I went to go and seen her and told her of the memory issues...and that wrong words were coming out more often...so she had me do a series of tests...and remember 3-4 words...say the words, then had me draw a couple of things...
Asked me if I had seen the neurologist yet( She was going to referred me to him after the eye check up)...I stated no...so she stated then that I had Alzheimer's, possible Alzheimer's..., From the small Vessel disease of the brain...so I will be sending you the memory clinic. ASAP...She followed me out to the waiting room after she had asked about financial situation.....Thankful I have the financial assistance or I would not be going to the doctor..
the next week later...still no call from the Memory clinic...I googled it and then called the phone number that was on it ...it was no longer in service....so I called doctor and let them know I hadn't heard anything......nothing no return phone calls a week later...then I messaged the doctor ...I got a response from the doctor office...the Memory clinic is no longer open it is part of the neurology departments......
They finally called I got a appointment next week...
This is the short version of my battle so far...
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