Updates...

 So I have been still having some left side droopiness from time to time...not everyday like I was... so bout  about three weeks ago or so I went to go get pizza at the local gas station ( hunts pizza) anyway on the way back I started having left side face weakness ( droopiness)..and my left arm felt weak...lasted about 5-110 minutes or so..so I decided to let my neurologist know the next visit the first of the next month...then  I was out trying to set t-post , had already drove I think two in and was working on the third one...I do believe I hit a rock ( our ground is rocky, I might add was trying to build another goat pen)...so I go and get the t-post puller and start trying to get the post pulled up with out bending the post ...readjusting part of it...the stupid thing came right down on my head..ouch...so I was done for the day...( and no didn't go to the doctor , I know I should have)..So I thought well I would let neurologist know about it when I seen him in first of the month....

 So first of the month rolled round, went to see neurologist...he sked it I was still having left side droop I told him yes...nd told him about the episode I had...so he put me on plavix (  blood thinner)...so I had hubby pick it up since he was already in town( our local town)..He also ordered a 48hour heart moniter...and see ya in 6 months....so I decided I would take it the same time I usually took my aspirin at 2 ( my stomach can't handle taking it in the morning)..so the next day I took it at 2 pm along with the vitamins I usually take...then along about 3 I felt weird on the left side of head, and I was freezing, shaky abit...the left side started drooping , my speech was slurred badly...so I decided to call my neurologist nd let him know, ..then I thought I dont want to wit for a nurse call-back , so I called ER nurse on call...needless to say..I needed to be seen since I had TIA's before so ambulance was called while still on phone...a trip to the ER...

  Got to the ER  a ct scan was done, labs( while in ambulance), chest x-ray, EKG was done.....then waited until test results were done...to find out what exactly happened...I say I had a bad reaction ..the med made me have another TIA...so got released from hospital and was looking on paperwork ( dismissal instructions)..and they diagnosed me with having a headache...Yes, I did have a headache around the left ear, but still a headache cant make your left side face droop and speech slurred at least I dont think it can...

Needless to say I will no longer be taking that med...I dont want that to happen again...I told one of the nurses that and all she could say was , no it didnt make ya do that....you should keep taking it...I told her I would end up back up here...I thought to myself I dont want to back up here...ya think I'm stupid or something...

So I'm resting today, and I thought I would update this blog, I do feel as if I do have a slight droop to the left side of face....

hanging on by a thread..

    I have felt for the last month that I have been hanging on by a thread...let me explain alittle bit and catch ya up of things here...I have small vessel disease of the brain and mild neurocognitive disorder...both can lead to dementia eventually...vascular dementia...So I had a two hour test a few weeks back( Memory-cognitive test ), just got results back....The results were mainly below average on most things...the doctor diagnosed me with Mild Vascular neurocognitive disorder...Some things on the test I was moderate impairments ( I'm not going into what I was moderate on)….
   Now the hanging on by a thread point...everyone has been told to stay home unless ya need something essential....needless to say since my hubby is an essential worker I have been mostly complying..( expect for doctor appointments)...now for the feelings...yes most day this doesn't effect me, but then those days I feel like any minute I could be go into loosing my mind...loosing who I am...See socializing helps people like me...with this virus and orders to stay home...I'm not able to socializie as I used to...I used to go to town at least three days a week, visit with people while going shopping, looking at things being around people ...but with this virus, can't do that now...I'm in my own little world, I'm sure I'm not the only one with feelings like this...
  People diagnosed with mild neurocognitive disorder are suppose to socialize to help them with memory/cognitive issues..but with the virus, most people with this have not gone anywhere to socialize...We don't talk to very many people at least those of us that live in the rural area ( like me).
Those of us in the rural socialize by going to church, going shopping, eating in restaurants, etc. as neighbors aren't close and really don't care I feel like...( they have their own things or are bad neighbors-that complain and aren't helpful)
   These are just a few of my feelings, I might ,might do a vlog on this , still haven't decided about this...I want to do a vlog but really don't want it out there, but I guess posting this blog it's out there..
Well , I guess that's it for now
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so answers , ugh!

  So the last couple of weeks have been interesting to say the least...I went and seen endocrine doctor, was told all looks good from my stand point, ya answered all of the questions right, ya need some lab work to be done, but I want it done like at 8am instead of now ( about 10am)….but like wait until the next time you are coming into town( big city)….So I'm like I need to get them done to make sure everything is ok....So later that day I call the local doctor's office ( not in the big city) and get an appointment for those....so the day comes for the labs , I fast, get my temperature taken due to this covid 19 virus ...labs are done...next week I get the results, everything looks fine, lets see what the neurosurgeon says....
  So I go to my neurologist, ( in which I made this appointment as a 6 month follow-up) He's hard to understand sometimes anyway but behind a mask ( in which all medical personal are wearing by this time)...looks like all labs came back ok, lets see what the field eye test shows and neurosurgeon says see ya in 6 months...is all He says , I wasnt' really expecting much to be said, just thought that I needed to be seen since I cancelled an appointment due to daughter's children( she was my ride that day)...and he had cancelled the one I had on the 16 of last month....not many headaches...not as many as I used to too.
  I go do the field eye test ( it was like 30 minutes long) , oh wait let me back up a bit...So they ( eye doctor) calls and tries to cancel due to this virus going around...( I do want to safe )...I'm like if I cancel and reschedule the Field eye test , then I will have to reschedule the neurosurgeon appointment,...so we reschedule the field eye test along with the eye doctor ( just moved it sooner on a Monday, it was on Wednesday)...so before the week is out they ( field eye test and eye doctor) call again and tell me that they need for me to come in on Wednesday at the same time as I was initially was supposed to be there. I'm early to my appointment ( as usual) and I get the field eye test done, ( I do believe it was suppose to take longer then 20 minutes, but I don't know first time having one), they take me to see the doctor ...I am going in for a consultation, the nurse says, and I'm like no, a cyst /tumor was seen on my pituitary due to left side face droop..she's like ok, so she goes thru and asks questions, check for color blindness, and the whole nine yards...I see the doctor ( my eyes aren't diluted)...then he says no need to see unless ya have any problems, like loosing eye sight, tunnel vision ( in which I have occasionally now the tunnel vision)
   It's the next day ( a shocker)...I go to my neurosurgeon appointment, and she states, everything has checked out, the labs looked ok from the endocrine , field eye test looks ok , We will see ya in 6 months, I will show ya the cyst /tumor on the pituitary...so she shows me my MRI scan and states well you have quite a few MRI's, I'm like yea...( I have small vessel disease and possible stroke back in September)...then she looks at the oldest one back in 2015 and she tells me that I had this cyst/tumor since then ...I'm like why didn't they see it back then and all she says is it wasn't a focused on the pituitary...I am dumb-founded by this infor...so she says I will see ya next year not in 6 months and they will do an MRi before you see my next...So unless I loose my eye sight they aren't worried about it and have no answers to why my left side of my face droops ask your neurologist...
   So I send a message to my neurologist about why my left side of face still droops, He sends back a message to get a second opinion....I'm like what....states that my primary can do that for me...So I messaged my primary about it....also if I need to get tests done again, he states no with all the tests I don't think you need a second opinion...What!!! I have since messaged him back wanting that second opinion.
   So I have no answers to why at times my left side of face ( mouth area ) droops, not BElls Palsy as I can shut my eye...I think that maybe the doctor's just don't know, just second guessing...the MRI clearly states that it's not stable at this time. I so wished I had some answers to why my face does this,.

the Waiting Game....

Since the last post I have had another MRI..more focused on the pituitary this time....I asked the neurologist about the results the next day after I had it done....the results were more words that are hard to understand..( medical chargin)...the results were as follows:
then they place the
findings: within the leftward sella is a circumscribed lobular complex signal intensity cystic -appearing structure,there is some intrinsic T1 shortening...structure result in slight upward convex margin of left adenohyphsis...Maximal dimesion is 9.7 mm...
Impression : mildly complex signal intensity cystic lesion in left adenohypophsis ...This is probably a benigh cyst with inspissated internal debris or chronic blood product...Adenoma is not suspect based on appearance...Clinical correlation with regard to any endocrinopathy...Imagine surveillance could be pursed to confirm stability over time.

So I think the cyst/tumor has grown in two weeks time 1.2mm ...So I   messaged the neurologist back and asked what is the next step , treatments...etc...He messaged me back stating that we will discuss this on next appointment....then Im like ok...then he messages back that if I would like to be referred to the neurosurgeon...so I discussed it with family....So I messaged him back yes, refer me to the neurosurgeon...they called that same day and told me I need to go see an endocrinologist and also have an eye exam....I'm thinking since they( doctor offices) called that quick that maybe they would call in the next few days.....ummm wrong...So I called the only clinic ( endocrinology) and nope no referral as of yet...I'm like REALLY... so I message my neurologist and ask whether or not the referral has been placed...then they place it( referrals)…Shouldn't have it been done before now....these cyst/tumor is growing...
 So that's where I stand...the waiting game...Maybe they are waiting for my insurance to clear the referrals...., who knows....It seemed like such a whirl wind being /finding out I had this as well and now like ok lets slow down the yeck down and not worry about it...At least thas what I think...I do understand its only one clinic that the hospital has , but it is growing people...

well that's it for now

Questions??????

  So the last post was about the new symptom I have ( drooping face at times, it comes and goes)….So I got my MRI scheduled, went to it....during the MRI my left side felt weird I can't really explain it...like somewhat it wasn't there of in the middle of my head...I guess that's how I would explain it...at times my whole left side felt like that...or like it wasn't there....now wait for the results...
 by the way the MRI was mainly focused on my ear cannel . Neurologist thought that maybe I could have a inner ear inflammation...t( he didn't even look in my ear...)
   So I got the MRI on Wednesday of this past week...The doctor called me , himself... with the results of the MRI...( he is hard to understand at times)….he said something about ordering another MRI at least that's what I got out of it...I was so shocked that HE ( himself) called me with the results..So I go to the hospital login and log in...and find that I need another MRI focusing on the pituitary gland..( I said which is hard to pronounce)...So I then see that the results of the MRI are in..
 The results are as follows: Abnormal signal in the left lateral Pituitary gland. predominantly hypointense on T1 and hyperintese on T2 with some internal heterogeneous signal possibly representing calcification or blood products...lesion measures 8.5 mm craniocaudad x 5 mm transverse x 6.9 mm Ap. the remainder of the pituitary gland stalk and optic chiasm unremarkable...
Impression  is Chronic small vessel ischemic changes and lesion in left lateral pituitary gland. Complex cyst cannot be differentiated from neoplasm....( now that is a mouth full and a lot of words I don't understand)...I know that hypo means less and hyper means more...and internal means inside..so of course I google all the words I don't understand and google the pituitary gland...
   Now the questions I have...Ok I had a MRI back in September Why didn't show up then...considering the how big it showed up on the MRI last week...?...Has this been the my problems all along?...is this why I have hypothyroid issues?...so many questions...and the one that is strong Is this Cancer?...and what needs to be done...What options do I have for this? Do I need an operation?...so many questions...I just wonder why it wasn't seen on the MRI I had in September...

well this is where I leave ya with all of these questions....

New Syptom

 Well this is sorta of an update of things here on my health....On about right after Thanksgiving I had an episode where my left side of face drooped and face was garbled....I didn't go anywhere but did message my primary doctor...it was the weekend...on that Monday morning I went to my physical therapy..did an errand in our local town( therapy is about an hour and half away)...then I get message from my primary to go to ER and get evaluated...so off back to big town ( and hour and half away)...I had been there earlier but not in ER....anyways...I get there and they basically say it was a migraine and since it had been a couple of days they didn't think they would  or could do anything ( no MRI)...so this was after a 5 hour wait before being seen...( I was exhausted so ..) So they asked if I was ready to go home I rested some first....
   After that episode...I would have episodes where my left side of face would droop.....So I had an upcoming appointment with my Primary doctor so I told the medical student about what was going on...The nurse had asked if the medical student could come in with the primary and I just stated that...sure they need to learn....needless to say I thought that the medical student would come in with my primary....so then the Medical student did the neuro test...then stepped out of the room....and then both my primary and medical student came in and informed that what I was having was a migraine with out a headache....I'm like what...…..they are sending me to a headache clinic, referring me to a neurologist....( I have a neurologist I told them)…..primary also said something about a list of for the neurologist to write out...….so I asked her ( messaged her) what it was...and she just message me back basically ask the neurologist if he thought it was a migraine....
  So I message my neurologist what is going on...of course I need to be send to determine if what is going on....So He states it is not a migraine without a headache...and it happened some ..a slight droop...He asked is it doing now..while he asked me to smile and I said yes...He mention steroid shots...but then he stated we wont go there yet...I told him that my Aunt has bells pasly...he then nope I just checked for that,,,so he ordered a lab( acetylcholine receptor binding antibody) and also ordered an MRI with and without contrast...as He asked if I had any ear pain...and I said some...that this morning I felt my ear was on fire....so the MRI is to check and see if I have any blockage in the ear canal and besides see what is going on in brain as well ...plus he ordered a methylprednisone pack for me...So that's where I stand right now...
  I have be taking the med...I'm on the third day...it seems to help some...but I don't know...the other night I thought I felt the right side droop some as well...but I didn't check to see...and it was only a like a twitch of a droop...I go back in about 6 weeks to see the neurologist and on the lookout for a new primary as mine is retiring next month....

  Well that's it for now,will keep ya updated as much as I can